Become a patient partner at our centre for epidemiology
Deadline for applications: 27 July 2018
The Arthritis Research UK Centre for Epidemiology, based at the University of Manchester, is an internationally-leading research centre funded by Arthritis Research UK. The centre is involved in research into many types of arthritis and musculoskeletal disorders.
In relation to the centre's PPI activities, they have a long-standing, enthusiastic and engaged Research User Group (RUG) which includes people with a range of musculoskeletal conditions and their carers. The RUG group members provide feedback on research proposals, lay summaries for grant applications and some members have been included as co-investigators on grant applications. In general, patients or members of the public are involved at different stages in all of research project.
To further their PPI work, the centre is looking for a patient partner who will have an important role in developing and delivering their PPIE strategy. The partner would be a person who has experience of living with an inflammatory musculoskeletal condition such as rheumatoid arthritis, juvenile idiopathic arthritis, systemic lupus erythematosus. The partner would contribute to the ongoing success of the centre in its next five-year funding period 2018-23. The patient partner will help ensure that the work is of relevance to people living with musculoskeletal diseases.
- Attend the centre's away days (approximately every 9 months) (plus preparation time - i.e. reading of relevant material).
- Contribute to the development of strategy and research priorities.
- Advise on pathways to research impact, ensuring that our research results are relevant to patients and carers.
- Write and/or review lay summaries of research findings from the centre.
- Opportunity to contribute to research priority setting activities with local patient organisations and the RUG.
- Develop new links with local or national patient groups.
- Attend Arthritis Research UK annual visits (one half-day per year), Scientific Advisory Boards (two one-day events in the 5-year cycle) and renewal panels (one per 5-year cycle).
- Be online (or have access to someone who is) so that you can receive and send email communication and review documents.
The centre's responsibilities:
- Provide training and support via the Faculty's Centre for Engagement and Involvement or internally (e.g. induction session for public contributors, how to review grant applications, how to communicate with researchers and the public, IT training).
- Provide administrative support to help with payments and expenses.
- Provide a named contact for all activities.
Duration of role:
- The partnership will be for 5 years.
Payment and expenses:
- You will be reimbursed for your time at agreed national rates: currently £75 per half-day.
- Reasonable travel expenses will be covered.
Closing date for applications: 27 July 2018. Interviews to be conducted in August.