Integrating involvement throughout the research cycle
We involve people with arthritis throughout our research activities via our patient insight partners (PIPs). Our PIPs take part in a number of different activities all across the research cycle.
- Setting research priorities - We ask people with arthritis what their unmet needs are and set strategic calls based on what they tell us
- Training researchers in PPI - Our patient insight partners co-developed and co-deliver the training workshop that we deliver to researchers who wanted to learn about patient and public involvement
- Reviewing funding applications - This is the ‘bread and butter’ of patient insight partner work. Our PIPs critique funding applications (at home and on subcommittee panels) to ensure that the projects that we ultimately fund are the most relevant to people with arthritis.
- Facilitating participation - In research projects, people with arthritis can, in some cases, help conduct the study (for example, they can carry out interviews with participants and can interpret qualitative data).
- Monitoring and overseeing - Our research centres are large investments of money and PIPs are involved in monitoring the work of those centres at annual visits as well as critiquing their future plans on renewal panels.
- Evaluating and disseminating outcomes - Patient insight partners are increasingly becoming central to the way that we communicate our research outcomes, as well as our involvement work. This includes writing news articles and presenting at conferences
Adopting meaningful patient involvement approaches to our research activities increases the relevance of our work, enhances research excellence and helps to ensure that studies with patient participation are as safe, sensitive and ethical as possible.