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Research involvement handbook

Researchers at the pain workshop

Our long-term commitment is to prevent and cure arthritis, and to transform the lives of people with arthritis. To achieve this, the research we fund must be addressing genuine unmet patient needs. The only way to ensure that the research we fund is relevant is to actively involve people with arthritis in our research activities, from setting research priorities to evaluating the outcomes of research projects.

Our patient involvement activities, and those of our funded researchers, should be purpose-driven and conducted in a meaningful and non-tokenistic way. This will ensure that these initiatives are valuable to researchers, the charity, and above all, to people with arthritis.

We have developed a patient and public involvement handbook for researchers (PDF 8.2 MB), which aims to support you to integrate PPI into your work so that it enhances your research.

The handbook contains information on:

  • Why you should involve people with arthritis in your research
  • guidance for basic science researchers
  • guidance for clinical researchers
  • top tips on how to meaningfully involve people with arthritis
  • case studies
  • useful resources

For more information please see our patient and public involvement handbook for researchers (PDF 8.2 MB) or contact the research involvement team at

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Arthritis Research UK fund research into the cause, treatment and cure of arthritis. You can support Arthritis Research UK by volunteering, donating or visiting our shops.