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For more information, go to www.arthritisresearchuk.org

What do doctors need to know in order to deliver the best possible care for patients with juvenile idiopathic arthritis within a clinical network?

Award Details

  • Principal Investigator
    Dr Mary Cruikshank
  • Type of grant
    Educational Research Fellowship
  • Amount Awarded
    £139,071.00
  • Institute
    Newcastle University
  • Location
    London
  • Status
    Closed
  • Start Date
    21/11/2012
  • Grant reference number
    20123
  • Condition
    Juvenile idiopathic arthritis

What are the aims of this research?

We aim to identify the learning needs of doctors involved in delivering the best possible care for children and young people with juvenile idiopathic arthritis (JIA), within a clinical network. A clinical network is a group of health care professionals who are all working in a coordinated manner to ensure that patients all receive high quality care, irrespective of where they live. By understanding the doctors’ learning needs and experiences, we aim to produce an educational framework which will support them in delivering the best care for patients within such networks.

 Why is this research important?

JIA affects approximately 15,000 children and young people in the UK. The management of this condition has changed in recent decades, with best possible care focussing on early diagnosis, management by specialist teams and earlier treatment. There is accruing evidence that the earlier the intervention, the better the outcome. Within the UK, widely differing standards of care exist. Clinical networks are developing as a means of providing a solution to this problem. The doctors involved in these networks are from various clinical backgrounds and have differing expertise. Pilot data suggests that there is a need for further training and support in this area.

 How will the findings benefit patients?

The framework produced will be shared with other paediatric rheumatology teams nationwide, as paediatric rheumatology clinical networks develop, therefore helping to support and deliver the best possible care for patients.

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