Our listening panel
It’s important for us to put people with arthritis at the heart of everything we do. To do this we need to listen to what people with arthritis are telling us, and ensure we build this into the way we respond as a charity. For the past year we’ve been working with a panel of 45 people with arthritis to better understand what it’s like to live with. We are using this knowledge to inform and shape our work.
Our panel has been taking ‘selfie’ videos in their own homes to share how their condition impacts on their daily life. We’ve recently asked the panel to share their experiences of interactions with health care professionals, good and bad.
There is a real difference in the panel’s expectations of healthcare professionals, between those that are effectively managing their condition and those who are struggling.
Those who are managing their condition are only looking for support in their treatments and maintaining their condition, whereas those who are struggling might expect more emotional support and are really looking for their GP to ‘heal’ them.
There is a significant need for practical encouragement, targeted knowledge and signposting to relevant services.
We understand how difficult it can be to meet these varied needs especially under limited time constraints and resources. We are working on how we can support you and people with arthritis to facilitate more effective consultations.
If you would like more information, please get in touch.