The steering group consists of academic rheumatologists, all still committed to clinical services and patient-oriented research (so not too ivory-tower-ish), along with people representing patients with different forms of SpA either through their involvement with a patient organization or because they have the condition (or both).
Professor Neil McHugh (Alt email) (Chair)
Consultant Rheumatologist, Royal National Hospital for Rheumatic Diseases
PA: Liz Williams
Professor Philip Helliwell (Vice-Chair)
Senior Lecturer in Rheumatology, University of Leeds
Dr Andrew Keat
Consultant Rheumatologist, Northwick Park, London
Dr Lesley Kay
Honorary Clinical Senior Lecturer in Rheumatology, Newcastle University
PA Ann Marie Smith
Dr Stefan Siebert
Senior Lecturer in Rheumatology, Swansea University
Professor Gary Macfarlane
Professor of Epidemiology, University of Aberdeen
PA Georgia Mannion
Ms Jane Martindale
Clinical Specialist Physiotherapist, Wrightington Hospital
Dr Pauline Ho
Consultant Rheumatologist, The Kellgren Centre for Rheumatology
Dr Raj Sengupta (alt email)
Consultant Rheumatologist, Royal National Hospital for Rheumatic Diseases NHS Foundation Trust
PA Liz Williams
Dr Jon Packham
Clinical Senior Lecturer/Consultant Rheumatologist, Haywood Hospital, Stoke-on-Trent
Professor Paul Bowness
Professor of Experimental Rheumatology, University of Oxford
Dr William Tillett
Locum Consultant Rheumatologist, Royal National Hospital for Rheumatic Diseases NHS FT, Bath
Dr Louise Hamilton
SpR Rheumatology, Norfolk & Norwich University Hospital.
Dr Iona Thorne
SpR Rheumatology, Northwick Park Hospital.
Trainee Representative – deputising for Louise Hamilton if necessary.
Mrs Debbie Cook
Director of NASS
Mr David Chandler
Chief Executive, Psoriasis and Psoriatic Arthritis Alliance – PAPAA
Ms Margaret Hughes
NACC patient representative
The importance of the patient perspective in clinical research is constantly emphasised at a national level, and we have been fortunate to attract the active participation of these steering group members. Their input to the research proposals and priorities which we have been considering has already been useful and distinctive.
As time goes on, we will need to co-opt additional members to the CSG, and its membership will be expected to evolve over time rather than being determined for a fixed time period. In order to allow effective working, it will always remain a relatively small steering group, rather than a representative body.