When a young person has arthritis: a guide for teachers

What is juvenile idiopathic arthritis?

  • Juvenile means that the arthritis begins before the age of 16.
  • Idiopathic means that we don’t yet know what cause it.
  • Arthritis means that one or more joints are inflamed.
JIA is really a group of illnesses, put under the same name because they share similar symptoms. There are several different types of JIA: oligoarthritis, polyarthritis JIA, systemic-onset JIA, psoriatic arthritis and enthesitis-related JIA.

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Will treatments affect school life?

The best treatment is a combination of drugs and an active, regular programme of exercises. Some of the treatments for JIA may have an affect on a child's school day or may lead to them being absent for short periods.

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How will JIA affect a young person in school?

Problems may include:

  • mobility (e.g. getting to and from school, moving around the premises)
  • hand function (e.g. difficulties in writing, using tools or doing physical tasks)
  • pain, which may cause tiredness, irritability and loss of concentration
  • stiffness, which characteristically occurs after prolonged sitting and in the mornings
  • fatigue
  • confidence and friendships
  • missing school days
  • difficulty with vision.

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Discussing a young person's needs

You'll probably need to discuss the following with the pupil, their parents and any relevant medical professionals:

  • Learning mentors
  • Pastoral support plan (PSP)
  • Individual education plan (IEP)
  • Common assessment framework (CAF)
  • Shared timetables
  • Statement of special educational needs

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Working with schools – who can help?

All staff members can help to make the young person’s school life easier. The special educational needs co-ordinator (SENCO) and the school nurse may have very important roles in supporting the young person to get any medical, academic or emotional help they need.

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