What's your Joint Effort pledge this National Arthritis Week?
Published on 16 July 2013
Our National Arthritis Week is taking place from on October 7–13 this year and we’d love you to join us.
We need your help raising awareness about what it’s like living with arthritis or caring for someone affected.
We also need to raise much-needed money to fund vital, world-class research that will have a direct impact on people with arthritis.
We know that arthritis can be a devastating experience and steals quality of life from 10 million people in the UK – that’s one in six people. Over 9,000 people completed our National Arthritis Survey last year, giving us a really useful snapshot of how the impact of arthritis is being felt among the UK population and how the condition is seen and understood.
Interestingly, we discovered that there are still some common misconceptions about the condition, such as arthritis is ‘an inevitable part of aging’ and ‘not much can be done to treat arthritis’. This National Arthritis Week we’re pledging to carry on working hard to bust these myths, by helping people living with arthritis feel properly informed about their condition so they feel able to make choices and worthwhile lifestyle changes, rather than simply ‘putting up with it’.
There are some aspects of living with arthritis that can’t always be covered in a typical consultation. So, during the week, our Health Promotion team will be promoting information aimed at assisting people with arthritis and their carers with everyday problems, such as mobility issues, home adaptations, gadgets, and carer support. We’ll also be asking GPs around the country to make a pledge to signpost this information, with the hope that together patients will receive a rounded package of care.
You can help us by making your Joint Effort pledge for National Arthritis Week:
• Give: Pledge to raise funds for Arthritis Research UK this National Arthritis Week. You could organise a bake sale, or wear orange day at work, join us at a fundraising event or donate your pre-loved goods at one of our charity shops.
• Share: Pledge to tell friends and family about National Arthritis Week and encourage them to support us. We’d love you to join us on Facebook (www.facebook.com/arthritisresearchuk ) and Twitter (www.twitter.com/arthritisruk ) to tell us your story and find out the latest news and information on arthritis. We’ll also be launching this year’s National Arthritis Survey in October and need you to share your experiences to help shape our activities.
• Learn: Pledge to find out how you can help yourself or a loved one living with pain and arthritis and improve everyday living. Our high-quality information is written and stringently reviewed by the best experts in the field and is available for free on our website or to order via post.
National Arthritis Week is also an opportunity for us to focus a little extra effort into our on-going fundraising activities. Throughout the year our community fundraising branches and individual supporters work hard generating income for the charity. With the additional publicity boost from National Arthritis Week we’ll have the opportunity to go that extra mile. If everyone holds one more local event just think of the difference that will make to funding vital research.
By making your Joint Effort pledge during National Arthritis Week you’ll be helping people like three-year-old Rosie Jupp from Leigh-on-Sea, Essex. She was diagnosed with juvenile idiopathic arthritis (JIA) after her parents Peter and Louise noticed that she began to wince in pain when they encouraged her to walk around as normal.
Peter Jupp says: “Rosie’s symptoms rapidly got worse and within a matter of weeks she would begin most mornings crying in what seemed like pain, and refusing to get up from the sofa after she’d had her milk. We’ve had to watch Rosie go through so much and as parents it’s been heart-breaking so see her undergo the constant hospital visits and tests to get a diagnosis.
“Rosie was prescribed methotrexate injections to try to get the condition under control and this was a real turning point for her, and for us. She hasn’t had any flare-ups recently and is doing really well, having come off the methotrexate injections last month – she’s active, running around again and mostly pain free. However, while Rosie’s condition is under control at the moment, there’s no cure for JIA. Without the pioneering research by Arthritis Research UK, my little girl – and many other children like her – would undoubtedly be wheelchair-bound.”
Last year one of our researchers, Dr Robert Froud, bravely pledged to wear a full orange outfit (including wig!) during a whole day of lectures at Queen Mary, University of London, during National Arthritis Week. He explains: “It was great fun and certainly got me noticed on campus that day! I may have looked a bit of a clown, but it was for a very serious cause and one which I strongly support.
"Arthritis Research UK is the only charity in the UK dedicated to funding research into the cause, treatment and cure of all forms of arthritis and musculoskeletal pain.
"Without the charity’s support I wouldn’t be able to carry out my work on improving measurement back pain treatment outcomes to make it easier for doctors and patients to choose between different treatments.”
The community fundraising team has pledged to make National Arthritis Week a Joint Effort. Please get in touch with your local regional fundraising manager and find out what exciting things are planned in your area.
Lorna Bromley-Martin - East Scotland
m: 07891 179 209
t: 01350 727 188
Catroina Connelly - West Scotland
m: 07736 157 816
t: 01505 690444
Caroline Robertson - North East and Cumbria
m: 07905 827 858
David Fisher - Yorkshire and Lancashire
m: 07772 111 250
t: 01423 887459
Ruth Owen - North Wales
m: 07736 157 800
t: 01492 518760
Anna-Marie Jones - South Mid Wales and N. Ireland
m: 07854 440 769
t: 02920 512438
Emma Macdonald - Midlands
m: 07772 111 265
t: 01530 262 889
Michael Clarke - East England
m: 07772 111 092
t: 01733 331721
Adrienne Noke - South England
m: 07736 157 794
t: 01590 670 461
Susie McCullum - South West England
m: 07736 157 798
t: 01225 313 632
Ellie Wood - South East England
m: 07854 273 403
t: 01634 832 265
Suzie Ladbrooke - Central England
m: 07736 157 801
t: 01934 713906
Visit www.nationalarthritisweek.org.uk or call 0300 790 0444 to order your National Arthritis Week pledge pack.