Goal 8 - Reduce pain and disability in children with arthritis, allowing them to have a normal future.
Reduce pain and disability in children with arthritis, allowing them to have a normal future
Development of more effective treatments will substantially lessen the impact of arthritis starting in childhood allowing at least 80 per cent of children affected to have a normal future life.
How we will measure progress?
We will assess progress in this field using the Childhood Arthritis Prospective Study (CAPS), a world beating prospective study run by the Arthritis Research UK Epidemiology Unit. This follows up over 1,000 children with childhood arthritis recruited from the major child arthritis clinics in the UK. CAPS gathers specific information not only on the clinical state of the arthritis but detailed information on the physical, social and psychological functioning of the child and the family.
Where we are now?
There is a lack of high quality information on the outcome following the onset of arthritis in childhood. Based on reports from clinics it appears that modern therapies have made a difference to outcome but many children remain in pain and are excluded from many normal activities. These include missing out on full time uninterrupted education as well as participation in sports and other child leisure pursuits. The childhood of many of those affected is punctuated by hospital visits, often for injections and minor or indeed major surgery to prevent or manage joint destruction and deformity.
What we will be doing?
Supporting a broad portfolio of world class research in this area Supporting key national research initiatives such as CAPS Supporting the Childhood Arthritis Clinical Studies Group as they develop high priorities for research aimed at improving treatment not only with drugs but in terms of exercises and other approaches.